Facing up to a possible autism diagnosis
author By Emilie Leeks,

Even from when he was a little baby, we had known that one of our children was a little bit different from other children his age. It was difficult to put our finger on it, and it didn't really affect how we got by at home, and nursery managed everything ok, so we weren't desperately concerned. However, once our son started at school when he had just turned 5, it was like they were trying to fit a square peg into a round hole! After a few months, we decided to start the process towards a possible diagnosis of an autism spectrum condition, in the hope that it would give us some clarity and help us to understand our little one's way a bit better.

After an extremely long wait (nearly two years), we finally had a date for the appointment. We had done a lot of research during that time (that's just the way we like to approach things, but fully understand that it isn't for everyone!), and in terms of our thinking and understanding about the appointment, we felt ready. But I really wasn't sure how I was feeling about it all emotionally. Did I want him to get a diagnosis to confirm what I believed? Did I want them to reassure me that everything was ok and that he would grow out of it? Were there other diagnoses that I hadn't considered? Did I want this appointment at all?! I decided to use all my Listening Partnerships in the week leading up to the appointment to talk about it, to ensure that I cleared all the emotions out and would be thinking clearly at the appointment itself.

I remember talking about feeling nervous as I wanted them to see both his 'kookie' side but also how amazing he is (i.e. what we see). I had a little rant about the 'reassurance' ("Oh, you shouldn't worry, all children do that sometimes") I've had from wonderful, well meaning parents who I had discussed my concerns with - it made me feel like I was going mad, that it was all in my head! As I talked, I trembled, stood up, shook my body (shoulders, arms, hands) and stamped a bit. I also sometimes just sat quietly with some of the nervous feelings that came up for me, and acknowledged that I was having them and that it was ok to have them - this is something relatively new to me, as I used to just try to squash them down and hide them away, as I thought that meant they were gone!

In talking the appointment through in my Listening Partnerships, I didn't think I had particular concerns - it was more as a safety net just in case anything came up for me. And it did! I had a simple but very insightful question from one of my listening partners, who asked me 'What would be the worst thing they could say?' - before this I would have said that obviously it would be awful to hear that our precious child is indeed on the autism spectrum. But when I really thought about this question, I suddenly realised that the worst thing would be if they said it was nothing, that he was actually like all the other children; it would really turn my world on its head - given that for years we had always felt like there was something unusual (not bad, just different) about him, and I would wonder how I had got it so wrong.

On the day of the appointment we were rushing around trying to get our three children to where they needed to be, so I didn't have time to think too much about how it was going to go. And when I got into the appointment and we began to talk, listen, and answer their questions, I was surprisingly clear headed. After they had met both with us parents, and with our son separately, they came back to tell us that, yes, they did think he was on the autism spectrum, and gave him a diagnosis of Asperger's Syndrome. And I felt relieved! There was also some sadness, which I will have to process at a later date (I am quite sure my listening partners will help me here too!), but it was within the framework of knowing for sure that if they had said there was nothing unusual going on for him, it would have felt much worse - that it would have meant that all my instincts as a parent were wrong. I now feel I can move forward from this diagnosis in a good frame of mind, and I know I wouldn't be anywhere near as positive if I hadn't had such an invaluable chance to clear out any emotions that were clogging up my thinking - I can't recommend Listening Partnerships enough!

A word or two about Journeys in Parenting; a responsive parenting community

Emilie is a Hand in Hand Parenting instructor, and was a paediatric speech and language therapist in her former life. She provides support and coaching for parents via the Journeys in Parenting community. Emilie lives in Berkshire in the UK with her husband and 3 children.

Journeys in Parenting is a community group for parents, carers and parents-to-be, who want to find out more about parenting in a responsive and peaceful way. The community offers information, advice and emotional support for this hard work we do as parents. The vision of the group is to be a safe space, where parents are supported in guiding their families in ways which: are respectful to children; meet the parents' needs; and lead to a more peaceful planet for all.

To work one-to-one with Emilie , request a free 15-minute trial call here or visit the website for more details

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